Merrick was 4 years old in the beginning clip of this video. He’s 11 now — and he has fewer words and skills than he did back then. Sanfilippo syndrome causes childhood dementia. We work every day to keep him happy, protect the skills he still has, and share his story to raise awareness and keep hope alive for a cure. Follow our journey. Help us raise awareness. 💜 #ChildhoodDementia #SpecialNeedsParent #sanfilipposyndrome #LifeWithDisability #OurStory
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